I'll be honest, It feels surreal to even be writing this. They have given us an official diagnosis on our baby's tumor. They've decided that it is a neuroblastoma (ie cancer). It is attached to the adrenal gland, and wraps around the baby's aorta.
We've known about the tumor for over three weeks now, and it has not grown significantly. If it remains the same size and does not metastasize (and the baby stays healthy) we will likely be able to carry the baby full term, and solve the problem with surgery alone. We don't know yet what the chances of this best case scenario are.
Even if chemo is necessary we've read that baby's handle it ok (whatever that means) and that overall the survival rate of a prenatal neuroblastoma is around 90%. In short, there is definitely hope.
We'll be meeting with a surgeon at Primary Children's next Thursday, and we are really hoping they can give us some more information on what to expect. As of now, we have yet to meet with a doctor or specialist that has even seen something like this in the past decade.
I am currently 28 weeks along - so we have a long road ahead of us - but we also have a lot of faith, hope, and support from friends and family to sustain us. Please keep us in your prayers.
THANK YOU FROM THE BOTTOM OF OUR HEARTS TO ALL OF YOU WHO HAVE HELPED US SO MUCH! I don't know how we would have made it through these past weeks without the babysitting, meals, kind gestures, and the shoveling of our driveway and walks.
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11 comments:
I'm so glad you have more to go on, at least. The more you know, the better. All things considered, the news is positive. Can I plan on having Mylee over for the day next Thursday? Xanthe would love to have her, and so would I.
all of you & your precious baby will continue to be
in our prayers.
Your family is in our thoughts and prayers. At least you have a better understanding of what is going on with a lot more to come. I know I'm not close and wish I could help out more but please know I would!! Love ya!
I love you Mel. I will, (we will) keep you in our prayers.
You know, I don't live too far from Primary...if you need help with Mylee, please don't hesitate to call!
We will keeep you in our prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com pag name LauraVDB
thegrannyblog.blogspot.com
We love you and will keep praying for you.
You are the nicest people we know. I have one question....why? Why does this have to happen to the nicest people? Our thoughts and prayers go out to you four.
Your entire family is in our thoughts and prayers always. Please, please let us know if we can do anything at all. Not sure if Mylee would like to spend a couple of hours with us, but if she is willing please let me know... If you need a meal or anything again let us know. We love you, mike, mylee and baby boy very much!
wow Melinda! with tears in my eyes I read this. I knew many families at PCMC with neuroblastoma. They were all surviors. My Daughter 2 years ago was diagnosised with a rare cancer called clear cell sarcoma. she was just 4. she is a survior. MIRACLES happen. She had 2surgeries, 16 radiation treatments and 10 months of chemo. Rocky roads lay ahead, but the lord loves you. I will pray for you an your family. Kim Gordon read my facebook and linked me to you. I know it's been years. But, I hope you remember me. check out our blog. Or her carebridge website. www.caringbridge.org/mckennagoates
We just want you to know that you are in our thoughts and prayers always!
We are praying for you and your darling family and especially that sweet little baby.
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